There's no pain, only sudden jerking movements.
Preface - IKYNMD. I have a few things going on, to put it mildly - have been seen by so many doctors in the States and in NY - I know things are complicated and this is one case that needs to be seen irl, but figure someone, somewhere knows something about these matters here, so am giving it a shot.
The issues I have with my spine and metabolism are:
Scoliosis at thoracic level - about 30 plus degrees
Degenerative discs and joints dx'd with osteoarthritis
Lamenectomy at l3, l4 which resulted in a pseudomeningocele at the site of the surgery (probably due to a rookie surgeon cutting too deep - was found years after, no treatment - apparently not leaking)
Spinal stenosis from C5, C6 to L1-L5
Osteopenia
The metabolic issue going on - hyperparathyroidism which is normocalcemic - calcium goes as high as 10.4
Neck pain is constant for many years - there's also tinnitus going on. The pain in my neck is followed by really loud crunching - which is probably bone on bone - this is the c5/c6.
My right arm will just start jerking pretty noticeably - it's not a benign fascillation. Had EMG done - there are deficits in both hands - was told it was the Carpal nerve. Right hand is also bruised at the knuckles after years of Raynaud's. Six months and the bruises (after cold and swelling) haven't gone away.
Interestingly, there is also no reflex in my right leg.
There is also severe circulatory issues seen on doppler ultrasound of same leg.
Many doctors, much imaging, many labs - no one can tell me why this is happening. MRIs and CT's both show severe degeneration and stenosis. Would this cause bruising on hands, spastic arm and loss of reflex on leg? ANA negative, Rheum negative.
Thank you for any insight. |
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